I used to be The Empire Strike Back. Now I’m just an interminable debate about the Trade Federation. That can’t be good for anyone’s self esteem.......
I’ve had my first COVID vaccination. Disappointingly Bill Gates doesn’t appear to be controlling me yet, but in fairness he probably has other things on his mind right now.
My wife and my GP have been talking about me again. Which can only mean one thing: I’ve got some new medicine to try.
Jersey has just experienced winter. For a week. And I really felt the cold. Which is odd, because I never used to. Or is it really that weird? Read on to find out more........
Do you sweat over the small stuff? I do. It helps me to get through the big stuff. We’ve been through some fairly big stuff as a family, but we’re still here, mostly smiling. And that’s a win in itself.
We are all connected. 24 hours a day, 7 days a week. But what about real human connections? They have never been more important than now.
Survival is underrated. I’m here to redress the balance. If you survived 2020, celebrate your win. And then read my guide to getting through 2021.
I like wrestling: WWE, AEW, I even used to watch Big Daddy and Giant Haystacks on World of Sport back in the day. This post is not about wrestling, but it is about physical trauma. Something wrestlers probably know all about.
A brief post inspired by something I read yesterday. No backstory, no explanation, no apologies. Just words.
Funko Pops, Venn Diagrams, and the fundamental interconnectedness of the different aspects of our health. Warning: it gets wibbly-wobbly and timey-wimey.
I tend to look on the bright side. But currently I’m bored. Apparently it’s a good thing. It enables you to be creative. I don’t feel creative though. I feel bored.
We all have good days and bad days. It can be easy to lose sight of this, particularly when there are more bad days than good, but let’s reflect positively on the good days instead of rushing headlong into the next day.
I love writing, and I feel a real privilege in being able to share my experiences with others. However, I do tend to forget that my family may not necessarily want me to air all my dirty laundry (and theirs) in public. Oh well, what’s the worst that could happen?
Are you a human being or a human doing? I’m a human doing, but I’m learning to accept the reality that there is value in who I am, not just what I do. Better late than never I suppose.
I overthink things. Maybe you do too. After much thought on the subject, one conclusion I have reached is: the more time you spend thinking about stuff, the more your brain hurts. Hurts you mostly.
What’s your kryptonite? Mine is stormy weather. Always has been. Years before I was diagnosed with chronic Illness my mum used to observe that high atmospheric pressure and stormy weather used to send me a bit crazy. Me and the dogs. No wonder she used to get us mixed up.
I’m only happy when it rains. Well that’s what Garbage reckon anyway. As a break from the mundaneness of talking about fibromyalgia and chronic illness, here’s 5 things that currently make me happy.
A follow up to Acceptance, focusing on the impact - good and bad - of an episode of Post Concussion Syndrome in 2018. How it taught me to substitute realism for optimism, and to be kinder to myself.
Accepting what life throws at you can be difficult, particularly when you don’t want to accept that reality. But when you don’t have a choice in the matter, and you are living that reality whether you want to accept it or not, it may be time to roll with the changes and accept the path that lies before you.
It’s chronic migraine awareness month, but I haven’t really got anything new to say about the condition so I’ve written about me. Just for a change. But I’ve added a few facts at the end to keep it vaguely relevant.
A quirky little blog post for a Friday: how hobbies help me manage my mental health. Featuring the usual random subheadings shamelessly stolen from the music of my youth: look out for a cheeky Ella Fitzgerald one......
Today is Fibromyalgia Awareness Day. Here is my attempt to provide an insight into what it’s like to live with someone who has fibromyalgia. I probably should have got my lovely wife to write this.......
Happy lockdown birthday to me! Musings on why a chilled birthday worked out very nicely for yours truly.
I had my Botox injections today. I feel like the guy in this picture. I actually look like I’ve absentmindedly drawn on my forehead with a red biro. On the plus side, my daughter is serenading me with a recorder. Lovely.
I’m having my Botox injections next week. Unfortunately they only make my forehead and scalp look years younger. But they keep the chronic migraine under control (mostly), so what’s the worst that could happen?
It’s 1am, my entire body is wracked with pain, and I’m wide awake. And yet the day was going so well.
Yesterday I cracked. I hit the wall. I threw my teddies out of the pram. I’m not proud of myself, particularly as I can’t remember what set me off. Please tell me it’s not just me. My sanity may depend on it.
I am an optimist mostly. Except when I’m not. And I may have spoken too soon when I said my family had got off lightly with the whole Coronavirus thing. Still, mustn’t grumble......
Inevitably I have developed symptoms of Coronavirus. It was always likely to happen. However I’ve been very lucky, and my symptoms haven’t been too bad. Additionally it has caused far less anxiety than ongoing elevated symptoms chronic illness. Perhaps that’s why I’ve been able to focus on the positives: two weeks with my family.
Self isolation, lockdown, quarantine: not exactly a picnic in the park. Like many people with chronic illness, I have a certain level of experience of being trapped within the four walls of my home. Here is my personal survival guide, starting with convincing yourself it’s a staycation and not a prison sentence.
Staying connected is vital whether you are in self-isolation or suffering a long term illness. Throw in some home schooling and you may need to stay sane by any means necessary......
Breathing is a really important facet of focusing on wellbeing. Not the kind of breathing you do whilst you are on the phone, composing an email to your boss and simultaneously using random hand signals to communicate with the colleague opposite you and the person hovering by your shoulder.....
It’s one of those weeks when even chirpy motivational posters can’t get me to the gym. Anyway, I’m still pumped from using the mouse.
What happens at Comic Con stays at Comic Con. Plus pedalling squares and climbing stairs. It’s all been happening this week, but most of it has been fairly mundane....
I'm on my own this week. Which is good. Additionally I have some positive momentum, so I've gone for something a little lighter, less intense, less soulful. Enjoy. Somebody might.
When we show our cards and make our intentions known, we’re allowing ourselves to be vulnerable, but it also allows us to be understood so much better (Michelle Escultura, https://www.everydayknow.com/songs-about-truthfulness/)
Taking off the mask, talking openly and honesty about the reality of living with chronic illness - whether via this page or via conversations with others - has enabled me to take a more objective view of my health and also enabled me to view other people with open eyes....